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The Birmingham Relationship Continuity Measure: the development and evaluation of a measure of the perceived continuity of spousal relationships in dementia

机译:伯明翰关系连续性测度:痴呆症配偶关系感知连续性测度的制定和评估

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摘要

BACKGROUND: Qualitative research has suggested that spousal carers of someone with dementia differ in terms of whether they perceive their relationship with that person as continuous with the premorbid relationship or as radically different, and that a perception of continuity may be associated with more person-centered care and the experience of fewer of the negative emotions associated with caring. The aim of the study was to develop and evaluate a quantitative measure of the extent to which spousal carers perceive the relationship to be continuous. METHODS: An initial pool of 42 questionnaire items was generated on the basis of the qualitative research about relationship continuity. These were completed by 51 spousal carers and item analysis was used to reduce the pool to 23 items. The retained items, comprising five subscales, were then administered to a second sample of 84 spousal carers, and the questionnaire's reliability, discriminative power, and validity were evaluated. RESULTS: The questionnaire showed good reliability: Cronbach's alpha for the full scale was 0.947, and test-retest reliability was 0.932. Ferguson's delta was 0.987, indicating good discriminative power. Evidence of construct validity was provided by predicted patterns of subscale correlations with the Closeness and Conflict Scale and the Marwit-Meuser Caregiver Grief Inventory. CONCLUSION: Initial psychometric evaluation of the measure was encouraging. The measure provides a quantitative means of investigating ideas from qualitative research about the role of relationship continuity in influencing how spousal carers provide care and how they react emotionally to their caring role.
机译:背景:定性研究表明,患有痴呆症的人的配偶照顾者在与人的关系是否与病前关系连续或根本不同方面存在差异,并且对连续性的感知可能与以人为中心有关照顾和减少与护理相关的负面情绪的经历。这项研究的目的是开发和评估定量评估配偶照顾者感知这种关系是否连续的程度。方法:在关于关系连续性的定性研究的基础上,初步产生了42个问卷项目。这些工作由51名配偶照顾者完成,并使用项目分析将总库减少到23个。然后将包含五个子量表的保留项目分配给84个配偶照顾者的第二个样本,并评估问卷的信度,判别力和有效性。结果:该问卷显示出良好的信度:整个Cronbach's alpha为0.947,重测信度为0.932。弗格森(Ferguson)的差异值为0.987,表明具有良好的判别力。通过与亲密感和冲突量表以及Marwit-Meuser照顾者悲痛量表的子量表相关性的预测模式,可以提供构建效度的证据。结论:对该措施的初步心理评估令人鼓舞。该措施提供了一种定量方法,用于从定性研究中研究关系连续性在影响配偶护理人员提供护理的方式以及他们对护理角色的情感反应方面的作用的定性研究。

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